What is Auditory Processing Disorder (APD)?
by listen2up
Auditory Processing Disorder (APD), also called Central Auditory Processing Disorder (CAPD), is a collection of brain-based impairments in the processing of auditory information despite normal hearing levels.
Due to hereditary factors, illnesses such as ear infections as a small child, or other factors (or a combination), someone with APD may lack the ability to rapidly discriminate and process sounds. For instance, tracking conversation in the presence of background noise can be much less successful for an APD’er than a normal person – an occurrence known as the “cocktail party effect”.
Only recently coming into popular awareness, the condition is recognized by audiologists although diagnosis can sometimes be confused with other (possibly co-existing) conditions such as attention deficit.
What Can be Done?
There is no known cure or remedy other than environmental support, such as facing a speaker and sitting close to a lecturer in order to catch more of what is being said (and possibly unconsciously read lips), helping to fill in gaps in perception of what is being expressed. Depending on the degree and exact nature of the problematic neural connections, some APD’ers may opt to try an amplification system as an aid, although others may be hypersensitive to sound and need – to a far greater degree than the average person – quiet settings to be comfortable and able to think calmly.
Like the case with other neural difficulties based in the brain, it may be possible to intensively retrain and strengthen existing neural structures to take over some of the missing function (known as “plasticity”) but audiologists have not endorsed listening-training programs due to insufficient quality and extent of evidence supporting these measures. Little work is being done at academic centers to address coping with this lifelong condition, estimated to affect at least 1 percent of the population. In fact, some listening-program equipment cannot be imported into the United States due to a lack of strong evidence to support its use.
Patterns of Difficulty
People with the condition may have a number of traits in common. For instance, they may receive feedback or determine that they:
- Appear to not connect
- Are forgetful due to running compensation strategies through their working memory (that has short-term, limited-capacity storage)
- Are inattentive to detail and may miss the full meaning of what is being conveyed; sometimes the language impact spills over to writing and reading shortfalls
- Rely (sometimes seemingly to a fault) on routine and structure, so may not transition well or cope with change as well as unaffected people do
- Have communication that seems brusque and without preamble, like a telegraph message, or when the speaker tries to open up, is not distilled to a few key points and can be hard to follow
- Can be somewhat poor spellers or make careless errors, underperforming compared with what would be expected for their intelligence level, although APD’ers are tenacious and can obtain advanced degrees
- Are able to present information in a prepared talk far better than they can respond to questions in the moment – producing answers on the spot can be difficult
- Find keeping up with and participating in dynamic group conversations – such as at a dinner party – hard
- Be likely to miss many social cues in general, being slightly tone-deaf to them
- May be easily distracted when concentrating and lose the thread when interrupted – affecting ability to focus or multitask
- Notice that noise and conflicting sensory input or distractions can be unbearable at times – but the APD’er is likely to hide this out of respect for others or an attempt to fit in
In fact, the overwhelming conflicting incoming sensory input to process can cause a feeling of panic or momentary disorientation and lead to the individual “snapping” or feeling somewhat traumatized. Sometimes any conflicting demand for attention can be unduly challenging to a greater or lesser degree, partly because working memory is more taxed than in a normal person.
Impact of the Condition and Feelings it Elicits
Along with limitations of the impairment are reactions it evokes in the affected person and those around them. APD’ers will tend to try to avoid making errors, choosing actions that can still engender resentment. These effects include:
Treatment by others:
- Socially or within families, the APD’er may tend to feel belittled, criticized, pressured, and/or avoided – there is a sense something is subtly off that might make the APD’er’s motivations, competence, or sense of etiquette distrusted; acquaintances feel let down, burdened, or miffed
Feelings:
- APD’ers can feel frustrated, despair of overcoming issues, and have some self-contempt or sorrow about innate limitations to managing the condition
- APD’ers generally try as best they can, so can sometimes be accused of appearing defensive when confronted with perceived shortcomings
Behaviors that may be typical for coping:
- Withdraw
- Rely on written expression
- Seem tense, vigilant, anxious
- Possibly bottle things up and be indirect to avoid creating confusion due to difficulty talking things through in the moment; “people-please” and have difficulty self-advocating or receiving credence for unseen problems
- Transitions can be extremely difficult, so the APD’er may appear resistant
Physical:
- Have a tendency to get emotionally exhausted more easily than most. Coping can be draining by the end of the day
Recognition of the Problem
Some aspects of the condition can be frustrating for everyone due to its subtle but pervasive symptoms that may escape immediate notice, but emerge as patterns or an unusual “style” or approach to things.
An APD’er personality may be unusual with quiet and sweet surface traits and strong-minded convictions under the surface, a combination that may have developed as a way of coping with the deficit.
With a bright individual, it may be hard for others to accept that he or she is challenged, with the challenges masked by development of complex coping mechanisms – but he or she does suffer all the same, and generally over time the nature of the difficulties will emerge and be more apparent, which can lead to harsh treatment in the workplace or ruptured relationships and a lack of sorely-needed support and acceptance without an intent on fixing the impediment.
However, rest assured that due to their limitations and vulnerability, APD’ers are among the least likely to intend to slight anyone and are managing the best they can, doing better when not stressed by ill-will or hostility.
The communication difficulty and invisibility of the condition make it hard for them to be good self-advocates. It may be helpful to compare it to a mental limp and treat them with the same consideration as someone trying to keep up while on crutches, to not take their challenges as an affront.
Aids for Interacting with an APD’er
Supplement spoken instructions with written ones.
Allow someone with APD to take notes – even in personal discussions this can aid memory, the ability to capture the essence of what is being said, and clarity.
Wait to say something until in the same room and facing each other, and be mindful of trying to talk over nearby background noise, such as a running dishwasher.
Realize the APD’er cannot control the consistency in which they are functioning – the degree of success may be spotty.
Be willing to entertain more follow-up questions than with a normal person. The APD’er may have trained him- or herself to not ask clarifying questions in order to be accommodating, but does appreciate the opportunity for understanding.
If APD’ers suspect they are socially tone-deaf they may enlist the opinions of support persons when assessing how to handle a situation. This does not mean overall they are naïve or immature, just that they are compensating for anticipated blind spots.
As with all unrecognized invisible disabilities, try to avoid blame and shame. This condition is one the APD’er lives with everyday without hope of improvement, and they have encountered their fair share of mistreatment as a result, so may harbor a store of hurt feelings as a result. Simple, nonjudgmental human kindness and plenty of forgiveness for frailties can go a long way to making the burden a little easier to bear and the individual feel a little more comfortable with human contact.
Recognize the APD’er may feel overtaxed at times and unable to keep up with the schedules of someone without the condition. With breaks to rest and recharge, an APD’er can still be fairly productive and competent in their own way.
Accept that structure and predictableness help the APD’er feel more relaxed, secure, and able to perform. Encouragement to get out of a rut, have a change of scenery, or to plan toward goals or contingencies may also help if the APD’er is overcautious or preoccupied with daily functioning.
Realize that despite their limitations they are generally well-meaning and sympathetic to others’ struggles, stemming from their own personal experience.
References
- APDUK. http://www.apduk.org.uk/ (experiences of people with the condition)
- Wikipedia. “Auditory Processing Disorder” http://en.wikipedia.org/wiki/Auditory_processing_disorder (intervention)
- National Institute on Deafness and Other Communication Disorders. “Auditory Processing Disorder in Children” http://www.nidcd.nih.gov/health/hearing/Pages/auditory.aspx
CAPD chart – Audiologists who specialize in this screening describe in a one-page table impairments along the auditory pathway, the associated symptoms, and advice for each of the four main subtypes (most cases are mixed, with one subtype dominant).
This is a fantastic article! Thank you for sharing your experience and wisdom.
Hi Bev,
Thanks so much! I did see another overview someone just shared today (albeit abbreviated — a couple of pages of the leaflet didn’t make it into the online PDF) — it’s from the U.K. where there may be somewhat more recognition of the need to cope day-in and day-out: http://www.uclh.nhs.uk/PandV/PIL/Patient%20information%20leaflets/Auditory%20processing%20disorder%20-%20A%20guide%20to%20help%20your%20auditory%20perception.pdf — Happy New Year, and please feel free to pose questions at any time, too . . .
From one “APD’er” to another: thank you! This is an excellent resource for others to read to understand me, but this also helps me learn to advocate myself and not let people’s treatment get me down or make me feel stupid.
Thanks Ashley! I’m glad you found it. Both of those reasons and purposes are why I put it together.
Nicely written! I have two boys (school aged) who both have AP disabilities. Wish there was more information out there on this. Great job!
i think the real problem with accommodations for APD and other disabilities is that you are asking to buck routines and power structures.
I started to cry when I read this page. I’ve always wondered what was wrong with me – borderline retarded? autistic? low IQ? ADHD? But none of those labels fit. Reading this was like reading a page out of my diary. So is an Audiologist the person I want to contact to learn more, and perhaps be diagnosed?
Sorry you feel that way, but glad you are on the start of having answers! Yes, certainly, an audiologist would be the one to diagnose APD. Some have greater experience in that screening than others, and you may have to pay out-of-pocket, but it is worth the price to know. There are resources out there, such as the APDUK.org group that offers a discussion forum through Yahoo groups for adults (OldAPD) and Facebook groups on (central) auditory processing disorder and auditory processing disorder, which might help you find referrals in your area.
Well written and accurate! Thank you for providing such a complete description with helpful ways and methods for coping. 1% is a big number! Misdiagnosing certainly happens. It’s extremely helpful to have your comprehensive thesis, thank you!
Thanks Doug! I am curious what brought you to the site, if you have it, know someone who does, or work with people who do? I appreciate your kind words and insight.
There are also some comments about APD taking place on Tumblr, such as:
“I have Auditory Processing Disorder. It’s a genetic disorder that is a misfiring in the brain. You can hear but when what you heard is being transmitted to the brain it can be blocked in a way I guess is the best way to put it so you don’t know what you heard. . . .” #apd #auditory processing disorder
And:
“People with APD intermittently experience an inability to process verbal information. When people with APD have a processing failure, they do not process what is being said to them.
There are also many other hidden implications, which are not always apparent even to the person with the disability. For example, because people with APD are used to guessing to fill in the processing gaps, they may not even be aware that they have misunderstood something until after the fact.” #aithe’s brain #auditory processing disorder
Check them out!
(http://www.tumblr.com/tagged/auditory%20processing%20disorder)
Thank you so much for this wonderful article. I am the mother of a sixteen-year-old young man who was diagnosed with CAPD when he was six. We have homeschooled since he was in second grade. While I did extensive research on parenting & teaching a child with CAPD as he was growing up, I have not done much research on how it affects teens & adults. Your article is very enlightening. I have always told my son he did not have a learning disability but rather a learning difference & we have worked together diligently to help him find ways to deal with any difficulties he encountered by using traditional learning methods. He is highly intelligent. His IQ tests at six were scored in the very superior range, and although he can read virtually anything you put in front of him, he struggles with comprehending it whether he reads it silently, out loud, or has it read to him. This has always been a terrible source of frustration for him. He also struggles to grasp new concepts, but once he does there is no holding him back. Over the years, he has learned to take great notes & he makes copious lists of everything. He is quite popular & has many friends, has held the same job for almost a year, & has had a steady girlfriend for almost as long, but emotionally he is very quiet & introverted..Your article is helpful in explaining the reasons behind this. I am very proud of him & while he & I have always been close, this last couple of years, our relationship, both as mother & son & as teacher & student, has become somewhat strained. I know part of this is typical with parenting any teen, but there are issues concerning the CAPD that your article addresses that I did not understand or take into consideration. Your article helps explain some of these issues that before now I was not aware. He is at Boy Scout summer camp this week, but when he returns I plan to discuss with him your article as well as some other research I have come across. I think he will also find it quite enlightening. I think it will help him better understand some of the things he is dealing with at this time in his life & has trouble putting into words to express himself. Thank you again.
Glad it could help. One of the best articles about introversion generally was in the Atlantic a few years back and is helpful for anyone who feels pressure to fit in or would like to be better understood and accepted: http://www.theatlantic.com/magazine/archive/2003/03/caring-for-your-introvert/302696/.
There are some blogs by teens with APD and groups on Facebook, FYI.
Taking little breaks to be in the moment can help make life a little less tense and anxious if your perception has a few gaps. For instance, backpacking or gardening can be very immediate and concrete, or art can provide some nonverbal self-expression, which could all lower some frustration levels and provide a much-needed break from needing to perform, and relaxation that helps with resilience when faced with stress and pressure.
Sometimes people with autism describe being born on the wrong planet and it can be hard if the environmental fit isn’t ideal for someone not neurotypical, but reassuring to realize this is not something that must be overcome, rather, something to advocate about when necessary so invisible or atypical needs can still be supported. It takes a little patience or understanding to create acceptance and awareness among the mainstream population.
I appreciate your note and salute all it sounds like you’ve done, he does sound very bright and capable and someone to be proud of.
Thank you for the article. I’ve been tested for hearing loss which I was told I have a 5-10% loss in one year. But as I’m reading this things are clicking. Such as in a restaurant I can’t center on the person I’m talking to because it seems like everyone is talking at the same time and just becomes a bundle of sound. If that makes any sense. If I’m having a parent teacher conference I always have a notebook to take notes.
I get told I’m talking too loud sometimes. Or I could be having a conversation with my husband suddenly I feel I’ve lost track of it and feel panicky. I have to say stop, calm down, back track the conversation. Or even start over because I became totally lost. I do read lips accidently, a college professor caught on and wondered if I had a hearing loss.
Now we’re going through the process to find out if our child has it.
Which ear has the hearing loss? Is your audiogram a smooth line or does it have dips and peaks, as may be seen when testing a range of frequencies in an APD screening? Most people have a right-ear dominance but I was told I have a dip in hearing in that ear in the frequency where most vowel sounds are heard (as well as slow processing speed in the other ear so the ears are not working well together). Good luck.
I had a normal hearing screening. It was my left ear I think. That one where you tell them if you hear the peeps. I need to go back since I still have vertigo issues due to inner ear issues . But there was dips and peaks. I want to go back and ask him about APD. and see what he says.
I would like to thank the wonderful people who wrote this article. my son was just diagnoised with apd yesterday. and i feel his pain, I too believe i have this disorder but growing up in the 80’s i was never diagnoised. my son is now in the 4th grade and has been teased in school since the 2nd grade. he would come home and tell me how the other kids were calling him stupid. and with tears in my eyes i felt his pain. so i did everything i could to keep him on grade level.. extra math and reading dvd’s and workbooks. at home and in the summer time. but as he is getting older it’s getting worse and i feel helpless i’m getting tired and it’s getting beyond my control it’s like he has NO short term memory i teach him the same things over and over but when the teacher move on to another subject then come back months later.. he combines the steps together from other math steps and were back at square !.. i have chalk boards white boards.. and all kinds of teachings aides in the house to help him.. but am getting tired.. his teachers say he is a disruption to class and he refuses to do his work although he has been taught.. but they Ignor him when he raises his hand.
Mika, maybe you would find support and advice in Facebook groups for parents of kids with APD (see: https://www.facebook.com/groups/14521230810/, https://www.facebook.com/groups/122185968465/). When kids have special needs, parents have to be really informed and persistent advocates for making sure their needs are met in school. (Often that would be through an IEP in the U.S.) Other outlets for him where he doesn’t struggle and get frustrated might also provide some balance (outdoor activities, pets, nature) so he can recharge. Good luck to you!
Thank you so much for this wonderful article. I have Acquired APD from a virus (they think it was Bi Lateral Vestibular Neurolitis) 5 years ago. It took them 3 years to diagnose my APD along with 3 other disorders of the vestibular and processing part of the brain. I was a Director at a company with over £100 mil turnover. I went from being one of the fastest thinkers, listeners and solution people to the complete opposite. I couldn’t follow simple instructions or retain enough info to make informed decisions. I was continually told it was stress to the point where I believed them. I handed my notice in and walked away. It took me years to build my career…………. I lost it in 2 years. It took another year to get them to listen. I went for a private hearing test, the guy said it was the weirdest he had seen for a long time and tried to sell me £3000 hearing aids …………..I went back to my GP!!!
My social life died. My friends frustrated. I went from loving a glass of wine in a bar with my big group friends to hating that environment …….it drove me crazy and what was once relaxing became very stressful. Once I loose the thread of a conversation Im stuffed, unless they stop and let me catch up.
I go vacant, I strain to understand, I am disconnected, my memory is bad and I have black holes where there is nothing.Notes don’t always work because you have to remember you wrote them in the first place!! I want to scream (I know how Michael Jackson felt when he wrote Scream!!) I have even had to change how I read and what movies I watch. Certain fast talking or accented friends (no matter how much I love them) become difficult to be around. Big Christmases and large family occasions have become much less enjoyable. I liken listening and processing to been in the toughest complex lesson or business meeting about a subject you dont know about and havent prepared for, and trying to follow. Thats what listening and understanding is like daily………..its hard tiring lonely frustrating work!! I have become much more insular. My personality profiles have changed since before APD. Im not the fast thinking, talking, driven, dynamic confident personality any more, APD has robbed me of that.
Its 5 years now. I have had support for the last 2 years and I know what I have and why I have it. I have spoken to trainee speech and language therapists and I am trying to put a support group together in my local area for adults. Difficult when I have yet to meet one other person with this invisible disability and boy what a disability it is. I have a disabled left hand …….not many people know that because it isnt on my radar and I learn to live around it ………………APD is impossible to live around ………you are stuck with it. Thank you once again and I hope this helps someone as it was hard to write x
You are not alone. Me and my son have been diagnosed with apd. I am now in my mind 30’s and it’s worst than every ilk am seriously considering asking my doctor to label me disabled and until able to work anymore. I have been hiding it for years I just thought I was dumb all these years. At work I try to hide the fact that it’s such a struggle but that’s even getting hard I have been let go of several jobs for not being able to keep up.once I was promoted then demoted 3 weeks later when I couldn’t learn the new system fast enough.
Hi Mika,
It is frustrating due to being invisible, and coping can be more tiring than for people who are not taxed by the processing challenges each day. It does help to know we are not the only ones. Thank you for commenting.
I am so glad you said (invisible) I always say that I wish I was invisible. I even heard my son saying he feels invisible at school. Or wishes he was.
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